Huntington's Disease Treatment Guidelines
To help ensure that patients receive a consistent level of care, several organizations have established guidelines for the treatment and management of HD.
Huntington’s Disease Society of America (HDSA) A Physician’s Guide to Management of Huntington’s Disease is the latest edition of their guidelines, which now shows a much better understanding of the disease’s genetic, biochemical, and neuroanatomic basis.
European Huntington’s Disease Network (EHDN) “International Guidelines for Treatment of Huntington’s Disease” provides global evidence-based recommendations for everyday clinical practice for the treatment of HD
Help Your Patients Stay Connected to the Support and Resources They May Need
Continue to support your patients and their families by sharing beneficial resources.
Advocacy Groups: Nonprofit organizations have been established to help improve the lives of those affected by HD, including Huntington’s Disease Society of America (HDSA), Huntington's Disease Youth Organization, Help 4 HD, and HD Reach.
Scientific Organizations: Organizations like HSG, HDF, and CHDI can keep you updated on scientific research.
Support Groups: Online and in-person groups can help provide safe and caring communities. Find groups near you at HDSA Support Groups and HDYO Support Groups.
Additional Resources: Your patients and their families can find more HD news, support, and encouragement at sites like: Caregiving.com, Caregiver Crossing Radio, Huntington’s Disease News, and HD Buzz.